Sunday, October 22, 2017

Catheter Issues!

This look sums up our morning. Hudson had a serious blow out nicely contained in his sleep sack this morning when he woke up. Unfortunately, his catheter was covered in poop too. So we made a trip to Riley Hospital ( THANK YOU, NURSE SUZI!!!) to get a new catheter put on that would no longer stink or put him at risk for infection. Now to relaxing the rest of this beautiful Sunday.....


Friday, October 6, 2017

Transplant Candidate News!

We got the phone call late yesterday that the Cincinnati team met and discussed Hudson's case and they all feel he is a candidate for transplant!!! The team actually meet and approved Hudson on Bryan's 35th birthday (October 4th)! What a gift! 

Tuesday, October 3, 2017

Saturday, September 23, 2017

Hudson's Feed Back Pack

This week we've been having Hudson practice wearing his own feeding pump during feeds. Each feeding he wears it as long as he is able which is anywhere from 10-15 mins. He really hates it though and does best if we keep him distracted.

Wednesday, September 13, 2017

18 Months Old!

Little Mister is 18 months old today! He is seriously happy all the time except when one of his sisters tries to hug and kiss him. He loves reading and looking at books, being held by mama, wrestling with dad, being outside, knocking over towers, and playing in the kitchen cabinets.

Saturday, September 9, 2017

Riley NICU Days 2017

Sunny 70 degree weather makes for a perfect day to be out doors! Hudson was able to watch his big sister play soccer today and attend the Riley NICU Reunion! We had such a fun day together as a family! We aren't all together very often since Bryan works weekends. So today was much needed and the weather couldn't be more perfect!  

Friday, August 25, 2017

Hudson Transplant Evaluation!



Hudson's transplant evaluation has officially been scheduled! 
September 27-29th we will be spending 3 days at Cincinnati Children's Hospital with roughly 14 appointments in all. Hudson must go through a full evaluation to see if he is a candidate for transplant, is healthy enough to have the procedure, and to see if a transplant will truly be the best thing for him.

Thursday, August 17, 2017

Call From Cincy Children's Hospital!

We got a call today from Cincinnati Children's Hospital! Oh my gosh this is crazy! It looks like things are moving forward and Hudson will soon be starting all that is needed for transplant workup.

Thursday, August 10, 2017

Hudson's Kidney Friend (August 2017 Update)

It's always fun seeing a friendly face and fellow kidney mama at our monthly renal appointment! And it makes it even more fun when us mommas show up with our boys in the same outfits and us in pink shirts!   I know I was greatly encouraged today. This sweet mama is finishing up her last procedures and will be donating her kidney to her son hopefully this upcoming fall.   Feel free to keep both of them in your prayers! xoxo

Sunday, August 6, 2017

Hudson Baby Gate

We bought a baby gate!!! That's right, #TeamHudson, a certain little boy in our home has learned to climb the stairs! It is SO exciting to see him meet another milestone. It's pretty funny, though, Hudson will only climb three stairs, look up and see all the rest, and whine and try to get back down. lol

Saturday, July 22, 2017

Hudson's Life Verse

When Hudson was born a friend had mentioned that they picked a life verse for each of their children. I thought that was such a neat idea!

Thursday, July 13, 2017

July 2017 Renal Update

When Hudson doesn't get to bed until way late, then has to be up super early for a dialysis appointment, that ends up lasting 5 hours long, it makes for a really cranky baby. All day.

Tuesday, July 11, 2017

Supporting Charlie Gard

I'm thankful that when my son, Hudson, was born in March 2016, my wife and I weren't forced to place him in hospice care even though that was one of the "options" and recommendations of the hospital that cared for Hudson in Indiana. I'm thankful I live in a country that allows parents to dictate the healthcare of their children.

Tuesday, July 4, 2017

July 4th, 2017

Happy Independence Day! Hudson has spent the morning crawling around and then decided to take a 2 1/2 hour nap! Woot Woot! But there's no staying up late for fireworks tonight as he has to be connected and on dialysis by 10pm. But that's okay he'll be asleep by 8:30 anyways. Hope you all are enjoying your day!